Parents create poignant bucket list for dying baby4/18/2012
Every parent anticipates the small milestones that await their children: a first ballet lesson, perhaps, a first kiss, a first job. Mike and Laura Canahuati of Houston will be denied these memorable rites of passage, as their daughter Avery is not expected to live past 18 months. She suffers from spinal muscular atrophy, a rare genetic disorder that strikes children. To lessen their pain, and to raise awareness of the incurable disease, they're writing a blog from Avery's point of view, dedicated to the list of things they want her to do before she dies. "Avery's" posts are sad, of course, but also humorous and always poignant. Kleenex required.
Update: Baby Avery Canahuati died April 30, but her parents still maintain her blog and continue their fight against spinal muscular atrophy in her memory.
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